Diagnosis of haemophilia often causes parents to feel anxious, fearful of the child's health or even guilt. Many times, these feelings lead them to overprotect the child and limit their activities. This condition often causes the child to feel low self-esteem and deprives them of important daily joys and activities with children of their age. This approach does not promote the child's smooth psychosocial development, nor does it prevent bleedings.
Parents and generally, the family environment of a child with haemophilia, must remember that children are always children. They need to play, run and participate in team activities with their peers like any other child. Parents need to understand that haemophilia is a part of their child's life and not the center of their world. They should therefore encourage them to play and have fun, with extra attention and some restrictions, where necessary. In this way, the child will grow up with confidence, sociability and autonomy.
1.Growing up with hemophilia Four Articles on Childhood by Dr. Peter Jones, Newcastle, Haemophilia Centre,
Newcastle upon Tyne, England 1994. Available at: http://www1.wfh.org/publications/files/pdf-1310.pdf
2.WFH. Guidelines for the management of haemophilia. 2012.
Available at: http://www1.wfh.org/publications/files/pdf-1472.pdf [Accessed 24 October 2019].
3.Lorig, K., et al. Patient Education: A Practical Approach. 3rd edition. Sage Publications, 2001.