Both the person with haemophilia and everyone involved in their daily lives must know what this particular bleeding disorder is. Everyone will be asked to contribute more or less to the prevention or treatment of bleedings.
The parent has a central role in educating the individual, when they are children, and their environment. The people in the close environment of the child (grandparents, teachers), who are involved in their mental and personality development, must be properly trained to protect the child from injuries, but mainly to know when and how to provide First Aids if needed.
The child itself must first understand the "peculiarity of their health", without feelings of shame, guilt or anger. They must learn to communicate their symptoms in order to receive the relevant treatment on time. Help them perceive the treatment process as a positive experience that helps make their blood "stronger".
1.Hemophilia in pictures Educator’s Guide. WFH 2008.
Available at: http://www1.wfh.org/publications/files/pdf-1318.pdf.
2.WFH. Guidelines for the management of haemophilia. 2012.
Available at: http://www1.wfh.org/publications/files/pdf-1472.pdf [Accessed 24 October 2019].
3.Lorig, K., et al. Patient Education: A Practical Approach. 3rd edition. Sage Publications, 2001.